Living with Ehlers Danlos, being an artist and living my life.
As an artist, the most important thing to me is my ability to create. However, having Ehlers Danlos Syndrome (EDS) can sometimes make that difficult. EDS is a connective tissue disorder that affects the joints, skin, and blood vessels. It can cause chronic pain, fatigue, and joint dislocations.
Living with EDS means that I have to be aware of my body’s limitations and often adjust my creative process accordingly. Some days, I am in too much pain to work for long periods of time, and other days, my hands are too weak to hold a paintbrush. Despite these challenges, I continue to persevere because creating art is my outlet. It is ...