A physical representation of the isolation of pain from chronic illness. Created by /PetraA a disabled artist with Behcet's disease to capture her experience as the island of her life breaks away and slowly shrinks due to deteriorating health.
Artist statement -
"It's like you're being buried alive but someone had the sadistic mind to throw you breathing tube"
This is how my husband described the last year of my life last night. Slowly but surely the island of my life has been shrinking away.
First, it took away my mental energy. It made me fatigued and exhausted constantly. Then it took away my motion. First in bits and pieces, periodic episodes of paralysis, then more insidiously thro...